When producers from major television programs began reaching out, offering a platform to share their story, the family saw a potential lifeline. This wasn’t about seeking fame or fortune. It was about casting the widest possible net in hopes that someone, somewhere, might see their son and offer medical insight or assistance.
“We just wanted help,” Zach explained years later, reflecting on his family’s decision. “We needed geneticists. We needed people who knew what this condition was. That wasn’t easy to get with our insurance.”
